Resources

Cincinnati Children's Hospital Medical Center, The Heart Encyclopedia

Internet Links

CongenitalHeartDefects.com -This site is devoted to providing information to members of the world-wide congenital heart defect (CHD) community. We do not provide medical advice, but we do have information which can supplement what doctors and other professionals provide. Whether you are looking for definitions of medical terms, hospitals caring for people with CHDs, other people with whom you can network and share experiences, links to support groups, articles regarding CHDs, or resources for the CHD community, you have come to the right place!

The Congenital Heart Information Network - is an international organization that provides reliable information, support services and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them.

Books

A Parent's Guide to Pediatric Heart Surgery - written by members of Pediatric Heart Research Association 

King of Hearts, by G. Wayne Miller, A true Story of the Maverick Who Pioneered Open Heart Surgery

The Parent's Guide to Children's Congenital Heart Defects: What They Are, How to Treat them, and How to Cope with Them, by Gerri Freid Kramer and Shari Maurer

The Heart of a Child (First Edition): What Families Need to Know About Heart Disorders in Children, by Catherine A. Neill, Edward B. Clark & Carleen Clark (Contributors) 

Hypoplastic Left Heart Syndrome: A Handbook for Parents, by Anna Marie Jaworski 

The Heart of a Mother, by Anna Marie Jaworski 

My Brother Needs an Operation, by Anna Marie Jaworski 

The Angel with the Golden Glow, by Elissa Al-Chokhacky